One week after Emma’s 12th birthday, she had a Malignant Giant Cell Glioblastoma brain tumor resected in January of 2009 by Dr. Goldman of Columbus, Ga. He recommended Emma for treatment at St. Jude Children’s Research Hospital shortly after her resection surgery. We lived at the Target House in Memphis, Tn. from January 2009 until April 2009 while she was in treatment. She had radiation therapy during that time and was on an experimental low dose oral Chemotherapy for 2 years. All of her scans, tests, and blood work until July of 2013 had been clean however, her primary medical professionals declined from using ‘remission’ as a diagnosis term.
The tumor she had is normally found in Geriatric patients, with a high rate of re-growth and low survivability. The WHO grade of the tumor was a 4. Not a friendly diagnosis.
After more than 4 years of clean MRI’s Emma’s original resection (brain tumor) site showed cystic regrowth in July 2013. As you can imagine that was not the news we were anticipating.
Emma’s primary Neuro-Oncologist at St. Jude recommended immediate resection. Emma had a second, smaller brain tumor removed Aug. 7th, 2013. This surgery took place at Le Bonheur Children’s Hospital in Memphis, TN.
Emma fought a fierce fit against Childhood Cancer, and Brain cancer is no joke.
She loved passionately, lived fully, laughed and smiled often.
Emma left us on August 28th, 2014 at about 2pm in the afternoon. She was 17 years old.It was her senior year in high-school. Her life touched so many and continues to make a positive impact.